Information about non epileptic seizures and Non Epileptic Attack Disorder.

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Expert Patients Programme in England

By on 15 May 2015 in General

http://crossfitraze.com/get-started/ If you live in England, you may find this NHS initiative useful for helping you to cope with NEAD. The Expert Patients Programme (EPP) is a self-management programme for people living with a chronic (long-term) condition. Most people diagnosed with NEAD find that their GP knows little or nothing about their condition. This programme supports people […]

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Definition of disability

By on 11 May 2015 in General

Many people find that their seizures make it impossible to work. However, getting the new PIP payment seems to be a major hurdle with some people getting the payment and others being refused. Here is a useful link that was posted on our Facebook support group by a member regarding the government’s definition of disability. […]

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Coping with Emotions Around NEAD

By on 16 April 2015 in General
Coping with Emotions Around NEAD

Getting the diagnosis of NEAD may raise a variety of mixed feelings and emotions. Here are some of them and ways in which you can deal with them. Denial It can be very hard to accept the diagnosis. The stigma attached to being diagnosed with a mental health issue is still very strong, despite efforts […]

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Todd’s Paralysis/Paresis in NEAD

By on 9 April 2015 in General

Sometimes, people who have a non epileptic seizure find that when they come round they can’t move an arm or a leg or even the whole of one side of their body. Naturally, this can be very frightening. This paralysis may last anything from a few minutes up to 36 hours.It’s known as Todd’s Paresis […]

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Useful Information to Print Out

By on 3 April 2015 in General

One of the members on our Facebook support group wrote this to help his workplace cope with his seizures. You may find it useful to print out to give to your school, workplace, social group etc. You could also laminate it and keep it in your handbag/wallet in case you have a seizure in public. […]

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What is CBT?

By on 3 April 2015 in General
What is CBT?

CBT stands for cognitive behavioural therapy. It’s a form of talking therapy that helps you to work through your problems by changing the way you think (cognitive) and the way you behave (behavioural). It is currently considered to be the best treatment for people with NEAD. There is such pressure on mental health services in […]

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Welcome!

By on 28 March 2015 in General
Welcome!

There are thousands of people in the UK (and around the world) who have been diagnosed with NEAD and many more people who care for them. Unfortunately, awareness about the condition is low, including among medical professionals. Our aim for this website is to provide as much information as possible so that people newly diagnosed […]

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Help for Carers

By on 27 March 2015 in General

Though looking after someone with NEAD can be a difficult job, it’s very important that you look after yourself too. We found some useful information for carers on the MIND website to help you do just that as well as information about where you can get help and other useful resources. You can read more about how […]

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Grounding Techniques

By on 20 March 2015 in General
Grounding Techniques

When a seizure is about to happen, you go into what is known as a dissociative state which is why you may feel as if you are detached from your surroundings or as if the room is moving around, a feeling of unreality. Not everyone gets this kind of feeling, sometimes known as an ‘aura. […]

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Mindfulness (and how it may help)

By on 20 March 2015 in General
Mindfulness (and how it may help)

Mindfulness is defined as “the intentional, accepting and non-judgemental focus of one’s attention on the emotions, thoughts and sensations occurring in the present moment” and is based on elements of Buddhist practice. It is a way of really thinking about and focusing on your feelings and emotions without judgement or trying to change them in […]

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