Information about non epileptic seizures and Non Epileptic Attack Disorder.

Melanie’s Story

By on 17 March 2015 in Stories I am 43. I got told in November 2014 that I had NEAD. I was told I had epilepsy 20 years ago. I was put on lamatragine,which they kept upping until I was taking 400 grams a day. Then in July 2015, they decided to do an EEG and it came back as no electrical seizures. They then sent me to Addenbrookes where they diagnosed as NEAD the symptoms I got where I was having absent times. People could talk to me and I could respond and act normal, but I felt as though I was not there. I was just an empty shell, my head felt numb, I felt dizzy and confused and my stomach felt like it was in a knot.

Nalhāti When I got told I had NEAD and told it was down to a trauma in my past, (I was sexually abused for many years by my stepdad and had not dealt with it) I was very surprised and thought, “how can that be making me feel ill?” I am still confused by it but I am so much better in myself after being told that. I have not had half as many seizures. I have had three counselling sessions so far which seems to be helping. I have spoken to family members and I am talking about the abuse more with people and I am feeling better all round.

So there is hope out there. I know for some it isn’t that easy, but I class myself as lucky that I have managed to cope. I still have a long way to go but I will get there. I hope my story helps some people out there.

Melanie, Norfolk


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